Sunday, November 10, 2013

Spots


I have “spots” on my ischium and ilium.  We (the doctor and radiologist) are not exactly sure what those “spots” are.  I will be having a bone scan in a couple of months to look at them again.

For those of you who haven’t been in the loop, I have been having soreness in my ribs (on the side where the cancer was) for over a month now.  Looking at my CT scan from June, there was nothing to worry about.  When I brought it up to my surgeon at a routine appointment, he decided we WOULD worry about it.  I was scheduled for a PET scan the next week.  My age and the aggressiveness of my cancer are nothing to mess with.  My original tumor seemed to grow overnight.  So just to be sure, I went for the scan.

At first I was anxious.  I didn’t think the pain was a big deal at first, but now that the possibility of the cancer having metastasized was there, I worried.  But then came peace.  In fact, I barely thought about it over the weekend of waiting for results.  It is what it is, right?  No amount of stressing or worrying can change that.  I went in to the doctor expecting bad news and expecting to have him lay out a plan of action for me.  That didn’t exactly happen.  I left the office quite a bit numb.  What does this mean??

He told me that there was no evidence of mets in my ribs. (I had had a full body PET scan.)  There was also no sign of cancer in any of my vital organs.  (WOOHOO!!)  But I had spots in my pelvis-on my butt bone.  Spots?  He didn’t say cancer, he said spots.  I was confused.  He explained that cancer presents as bright spots on PET scans and these were not bright.  But they were abnormal and a little worrisome.  He tried to reassure me, but it was also his job to inform me of worse case scenarios.

My doctor ordered blood work to measure tumor markers.  If a cancer is large or quickly multiplying, it can be seen in the blood.  He said the next step would be a biopsy to see if these spots have the same pathology as the original tumor.  However, a bone biopsy means surgery as it would be done under anesthesia.  We would do an oral chemo and a shot that should strengthen my bones.  But all of this would depend on the blood work.

Even though my doctor tried to reassure me, I was sure the cancer was back.  I was numb on Monday and sad on Tuesday.  I figured I should be getting my affairs in order.  Because it is what it is, right?  But then came Wednesday and the phone call from the doctor.  My blood work came back completely normal.  Tumor markers were not elevated and the spots were not bright.  Did I want to go ahead with the biopsy?  Or did I want to sit on it (hahaha) a while?  I asked him how comfortable he was not doing anything at this time and he again tried to reassure me.  So because everything else looks great (WOOHOO!), I am waiting on it.

I am going about living my life.  IF these spots turn out to be cancer, we’ll deal with it in a couple of months.  For now, I have no evidence of disease and the holidays to prepare for.